Wednesday, October 28, 2015

Mostly vanity

You know what? After this 3rd baby I have made a special effort to put myself together every morning.

People said to me right after having him-you look great! All dressed for the day!

My response "Because I do not want to pass the mirror and feel like the crypt keeper!"

I am pretty honest about being vain. If you want to wear birkenstocks with cracked dry heels and no bra and that makes you happy then fine.

For me. I have been using antiwrinkle cream since I was 20.

Yes, for vanity reasons! Why else would someone do it.

I have the feeling that I am going to be the obese older lady who gets a facelift to look younger. I am not going to have a raw avacado for breakfast  and eat all fresh everyday to help stay looking healthy and younger...I'll take the knife thank you and the norco I am pretty sure they would prescribe.

Because I am  bit more of a lazy vain.

So sometimes I want to make a list of advice for new moms or even moms who have just had a baby

"if it is a chore and you don't want to do it...don't do it"

"if you are feeling yucky try wearing blush. Just blush. If you aren't a makeup person just try it. It does make a difference. Not bronzer...I repeat not bronzer but blush"

"Make sure to shower everyday. Cleaning your person and shaving (if you are into that-I have recently discovered not everyone is) makes you feel human. We do not have cat tongues,"


I would much rather spend time getting myself ready for the day than cleaning up my house
This is the kitchen on a good day.

To all the adults who keep things clean. You are welcome. 
Its like when I watch hoarders. It makes me want to clean something






Thursday, October 22, 2015

Blessings of partial Inclusion

His first date night with his dad :) 2009

I only have my experience in working with the public school education system. In my specific area. 
When I googled time out room I got lots of horrific stories of it being misused. children locked in there for hours, anxiety attacks, hospital transfers. 

Not all school districts I know use a time out room. 

Someone once lamented to me about whether or not it was fair that a child with severe disability who would most definitely not be apart of society in a social way in a worklplace adult environment-should have  a one on one nurse, a one on one aide etc. 

When did it become our societies responsibility to pay for all of these things? they said

It costs so much money and schools already don't have enough. they said

I was not dumbfounded hearing this.
Since my childhood I had overheard differing views of the no child left behind act. 

My response was 
"I am grateful for it. As a society we should be compassionate and loving to individuals whatever their disability. Those parents with children-especially with children-who have 24/7 needs-they deserve to have their children also looked after while at school."

It feels a little like if you don't fit this mold and you only need this much then the school system should not be for you or your child. And that is not only-in my opinion-un christlike-but misses the opportunity for love. 

The parents of kids with special needs-I have met- have been more than willing to go above and beyond for their child. They try to make whatever they can work. 

Not everyone is blessed with the financial means to provide certain care for their children-even when they do make very large sacrifices. 

I am grateful-even if it is very very flawed still-that there is recognition of the worth and of the different challenges  our kids have. 

That schools-in my experience-have been working on being more accommodating. 

One of my blessings is a small group classroom that my child can learn in. 

I realized a year ago after feeling like for so long I was battling uphill for so so so long that I needed to continue to push to find my village. 

That I could not build and help my child just between my husband and I.

I am the foundation for my child and I still help architect for him to help him be the most successful he can be but I need help putting up drywall. 

They say it takes a village to raise a child.
 But really, it takes a loving, caring, educated, compassionate and hard working village to raise a child. 
Which most often involves (as a parent) hand picking who gets to be in it. 

I am in no rush to mainstream my child. 

The most important part for me is not the validation from educators that my child is worth it and belongs in a large class (it will piss me off if  I get that from them, however..) 

but that my child learn in an environment that they can be supported and taught. 

I know my child has been/would be overwhelmed in a large group setting. 

My child is aware enough socially to know when they are the only one with a special behavior chart, that they need to be escorted and have an aide. 

They have struggled to make friends, keep friends, they feel different and unconfident.

I want to teach my child independence and those skills for independence as they are capable of having them. Not limited to black and white grade level curriculum goals. 
Even the Federal government has stated education is social, emotional along with academic

I have been in school and I know the ostracizing affect being in resource can have socially on a child-especially in middle school. 

I am not looking for, or to avoid all uncomfortable or growing situations for my child

but when there IS an option available for partial inclusion 
I will do the Obama fist bump.

I am hoping to teach and nurture each of my children how to function in society. Not to make them pretend to be who they aren't but now to cope with what there is.

Because this means-for me-that my child has gained the skills needed to feel confident and successful with a larger group of peers.

And that is a huge HUZZAH as a parent


Thursday, October 1, 2015

The importance of connection



I always dreamed of having children. I had a dream of living on the beach, going out to the sand and playing with my children in the California sunshine for their growing ups. 

I figured out pretty early on that a lot of my motivation comes from having fun and spending time together. 

Wanting to spend time with someone who does not always have the tools and means to give back can be exhausting and feel hurtful because...well we aren't Jesus and perfect. 

In our family we started date nights. It first started out as a way to get my husband and our oldest out of my hair and out of the house so I could have some quiet time

but as we added to our family with a second and now a third having that one on one time with your children-has been a game changer. 

I like my people better when the regular demands of life and parenting are put on a burner and our main goal when we go out is to enjoy eachother. 

It is hard to bond with someone when either you or they don't have anymore to give, or just aren't equipped the same way to give how you might personally need it. 

My child does need time. Lots of time. Each of my children needs lots of time. 

And I had to learn how to separate (and still learning how to) the difference between the emotional and mental time it takes during the day, weekends, summers, vacations to care for them and anticipate their behaviors and the actual bonding time that we have. 

Because they are two separate things. 

For us a Sushi night is the best kind of night. 

It involves usually playing math games and listening to what they are thinking about even if it means waiting long pauses before the full story comes out. I am learning better with my a.d.d brain not to interrupt or assume a sentence is over. 

Our last date I made a point of dressing up for our date, lipstick, heels etc. 

And on arriving at the restaraunt my child proudly told at least 3 people

"We are on a date!!"


And it made my heart so so so happy. To see them not just excited but also chatting up the waitress and appropriately responding to questions asked. 

Its these nights that I most remember why I fell in love with this person I brought to this world on purpose. And how grateful I am and lucky to have such wonderful people in my home.

Even if sometimes they still smear poop on things.





Tuesday, September 29, 2015

Blessings of the Spectrum

For any parent who has a child with extra special needs a diagnosis could be a blessing or a curse (and maybe this just depends on the day). It may or may not be a relief having a new starting point with somewhat structured direction.

I only have the experience of being in my own shoes. And those shoes were usually worn-in rainbow flip flops.

When my child received a "diagnosis" if you will it was a relief. Not because there was a "Oh now we know how to fix it"it was more of a "Now we can get his IEP or 504!".

I remember having a discussion with my husband. I was sitting on our bed the white comforter squished underneath me and talking to him about the parenting struggles and doubts I was having. I talked to him about how I struggle to know what is best to do for our child, how exhausting it can be to deal with tantrum after tantrum and feel absolutely no control over the outcome.

I remember he said "...down the road they may receive an autism diagnosis and it might be nice just to have a starting point". Like the basis of "Oh this is typical with these specialties" and "Its not just me being a poor parent".

I think our real starting point was our child as a toddler. And for years I felt (and was verbally) judged that my parenting was not strong willed enough to will my child to obey. To sit still. To not tantrum.

Since a baby I have read lots and lots of parenting book, trying to find new key pieces to try when just natural intuition wasn't always helping.

I read Parenting the Spirited child, Happiest baby and Happiest toddler on the block, and many of which I never finished because I knew the philosophies were so different than my natural style that they would not work in our home.

For years I was more silently overwhelmed and would get depressed that I wasn't doing enough as a parent. Then I had to come to the conclusion that my job was to help make my child the best human they could be on this earth. Whatever that meant for them.

Yes, I sought help from professionals and my pediatricians but on meeting my child "he made eye contact, he speaks, and they sounds very typical in behavior". But what I see now that they couldn't see was the actual  potency and fervor these behaviors had.

When I described the behaviors (which anyone else rarely saw-they were saved for home most of the time and I began not venturing out as much because I was embarrassed and tired and didn't want to share them publicly-my fault not my child's)AND I primed my child and prepared pretty carefully to avoid extra stressful situations with others around (which obviously led to all outbursts mostly being at home..while my husband was traveling or I was home alone).

 Looking back I think these professionals without experiencing the behavior first hand thought I was an overly paranoid mom.

So, with my child being 7 at the time and receiving a "diagnosis" it was in no way surprising or shocking to myself or husband but it felt like a mini victory for me.

I was not just a bad parent!

I had already guessed they were on the spectrum because in times of trouble I read and research what I can and I had been with children my entire growing up and babysat, did respite care etc through college. I knew what more typical behavior was. I didn't start from scratch on my child development knowledge.

So for any parent who might get a diagnosis, a diagnosis is not an excuse. It does not need to be labeling your child but it can be very empowering. A blessing of a diagnosis or approximatey to one means there is a different starting point and often-and obviously-there is not a cure but it means there is some knowledge out there that can be found that can be helpful.

I still struggle with figuring out my balance as a woman, a parent, a wife and a child of God who enjoys participating in serving at my church.

And some days my childs specialties feel like a curse and I get "woe is me! ish" but the biggest bless that I try to constantly remember in my mind is "I created this child on purpose-they are lent to me from God and I'll be damned if I don't do all I can to help them be their best selves, whether they can aknowledge my efforts or not".

For anyone with a newly enlightened starting point tighten your girdle and keep going. You are capable and doing hard things-even stressful things (which may age us my hundreds of years in the face) brings about the empowerment of personal capability. 

Thursday, July 23, 2015

Emotional spending or structured getaway?

OK So I will just disclaimer. On days I wake up all of a sudden, the household is already up and husband is kissing me goodbye while leaving for work at 8ish I usually have a little more anxiety.

Then, coming downstairs and seeing the energy level and my boy starting to work into stimulation (running around in circles, repeating the same thing) its upps the anty.

Usually I need to decide on the kind of day for us right away.

 Either I plan a strict schedule, tell myself not to worry about it and keep moving with the day. Because I can handle things how they happen (but it is hard for me-meaning sometimes I am just big and tired).

So when the kids ran outside while I was eating my cereal (in pj's no less) and then the neighbor kids came over (3 of them) I was like "OH no".

I think first I'll give it 20 minutes and stand by the slider door and eat my cereal but as soon as I see any sign of struggle between my oldest and the youngest (I think he is about 3) which I intervene I know I need to reasess.

This means I give the kids a 5 minute warning after I see more energizing from Andrew (and banned them from coming in the house-I just cleaned it up yesterday!) Because at 9:30 in the morning its just too early to have social confrontations for me to handle between my oldest and the other kids.

Yes, yes. There are no guarantees but it is highly likely that it will happen. I am not being pessimistic about he situation I just know my son.

When I start seeing some of these behaviors right in the morning its really easy to start worrying about about the new school year and then this can spiral into worrying about the other parts of the future with a 3rd child! This is where someone needs to dump cold water over my head and say "Calm down!"

I-just like my son- need to be distracted and make a very scheduled day and figure out how to make it "fun" for all of us. How to help the day build on what we can do instead of worrying about what hasn't worked and being sad or bothered about it.

My first thoughts are of escaping on vacation as a family

 (seriously, go to Disneyland-one reason why our passes were so awesome and dreamy to me when we lived down there) because even though Disneyland was stimulating it had a lot going on. We have been going to Disneyland since our guy was little.

When it was just us and the kids or me and the kids we had figured out how to make it work for our family dynamic. I would take going to Disneyland with Andrew almost any day to going to a crowded Thanksgiving point (the educational fun center that is just a 15 minute drive from our house now).

Believe it or not but I feel like Disneyland is more structured and patterned than anything at Thanksgiving point. Even when Disneyland is really busy its usually full of other families not rogue children.

 There is too much crazy running around and kids whose parents feel can self monitor and are not paranoid like me or have the same needs with their kids let them run loose and this creates more worrisome social dynamics for me as a parent with a child who often does not understand all those things and frankly does not always behave appropriately.


So being 38+ weeks pregnant and tired and sore I think we are going to run errands (Still stimulating) but with my awesome minivan with wireless headphones and a movie that you can pop in and the fact we don't live very close the errands-it will be better than trying to corral anyone all day in my home. Structure and pattern for the day will be a lot easier carried out in a contained environment.

And seeing as now running errands is my escape from the house I kind of realize how its also a pattern of emotional spending! lol I guess we all have our issues to deal with.


Playing Kinder bunnies

Monday, July 20, 2015

Prada heels and hearing voices


I'm very pregnant right now. When I told my OB that I was feeling a bit "Wreck it Ralph" I think it alarmed him. I had to explain it was the quote "My emotions bubble close to the surface"

I sat there and basically started tearing up and explained how  "I just feel on the brink of tears like when they suggested he be transferred to a specialized classroom I went home and lost it-cried uncontrollably"


He sat there (and for the record I love him and think he is a great doctor) looked at me and clarified "who is they?"

And this made me laugh because my first thought was "Oh my gosh he's concerned I am hearing voices!"

Any parent has growing pains-as in learning what it is that your child needs and each child is different. Learning to cope and adapt with these needs.

And OK stepping back I am reminded that when you are pregnant emotions are often brimming.

I could cry for a sad commercial, to see a baby smile, that I can no longer shave my bikini line because my stomach is too big to maneuver around but all these smaller things aside I have to asses my own loss of maybe the hope of a different kind of normalcy.

I have learned that in many ways I am grieving at times the loss of my own dream for my son. I can just see now hell raining down from other parents who would say to me "never wish for a different child!" And I think I could just look at them politely and say "I don't wish for a different child-I wish I knew better how to help mine in the perfect way perfectly so that I never had daunting exhausting moments!"

Actually, probably back that up. I don't' think I could say that politely but I think in a snooty, absurd and immature way I imagine I could just turn up my nose and prance away in Prada heels while they smelled my Chanel no 5.

Because I sometimes too-can only tantrum to express my feelings-I would just figure out how to do it in a very haughty way that I am sure I would feel guilty about later but be very satisfied at the moment.  Like a good ol' "Well you smell like mustard".

Last week I had a big crying moment. After talking my son down from throwing large rocks at me and the others who were at the 'playdate' getting him home, getting him some peaches (I knew he was probably hungry as well so his coping was down) and he self regulated and cheered up I had to go to the bathroom close the door and cry to myself. I also texted my sister. Because I am a person who knows I don't like to cry by myself.

Sometimes it just feels like a lot. It feels exhausting. When the everyday norm doesn't feel like the norm it feels very very heavy.

I think this is a very real part of having a child that has special needs.

So after years of being told that my son was "typical" and me doubting my capabilities as a mom when it seemed that other families did not have the same issues we were dealing with, doing tons of reading of parenting books, online research,

After years of this to go from "HE doesn't need testing" to "We think he would benefit from transferring to a specialized classroom for next year" it was kind of dumbfounding.

This was in the space of like 2-3 months.

I think I was so bothered by it because I think in a way when for so long was validation but when I got it I was sad that he really did need it.

It wasn't just about maybe I was a bad parent, that I wasn't crazy for worrying about these things and dealing with them but that the normalcy that I knew in my education growing up was not what was going to be best for him.

I knew this but when the suggestion came, when the test results came back and the school saw more of the pieces of my child it kind of solidified this path.

For technical purposes I'll be more clear. My son does not qualify for AUTISM. And Autism spectrum disorder is not included anymore in diagnosis for federal autism testing. My son is high functioning, he is verbal, he does not really fit a classic diagnosis of Autism or Aspergers, he has lots of pieces of each. And as I told his school psychologist "I understand this but maybe he is a new niche".

I recognize a big difference in the struggles between parents with children who might be able to be diagnosed as what I might Say is Classic autism (I really don't know if there is a politically correct way to say this-so if its annoying I guess I need to click my Prada's at you for now). I am only somewhat e d u m u h c a t e d.

I am relearning to have empathy for parents with 'typical' kids. My husband does not like this term typical. Because all kids are unique and have different challenges (he is an amazing spouse to have at IEP meetings and BIP meetings btw) but to me in order to be able to recognize the amount of effort I do put in everyday and not judge my own self for not being able to 'control' my child or teach my child by direct example (where they observe and mimick naturally) I needed a way to support my struggles so it is a term I use. And to not feel so frustrated at times "This worked yesterday what kind of day is today going to be like????!" I needed to differentiate between my struggles and others.

And to validate so that I did not keep comparing myself to other parents. What your child doesn't play dead and scream like a feral animal when they are overstimulated and tired and if someone giggles (even not at them) not understand their meaning they don't try to scratch them? hmmm..thats weird.

I have had to come to terms (and I am learning everyday) to have empathy and love for any parent with a child of any age tantrumming (ok this has to be a real word but I can't figure it out...yes see below I am not a perfectionist personality-but my spell check is angry at it right now) because sometimes I want to say while wagging my perfectly manicured finger "Uh, Uh, you have no idea-calm down and stop complaining".

Despite wondering at times if my son would be better off with a mom who was a lot more type A red personality (if there is any real validation in that- I am a yellow who is easily distracted) I realize with my sons naturally very defiant tendencies, it has been good that my quirkyness has benefited him.

And I have to take my own advice at times. It is normal and healthy to have breakdown moments. For any parent of any child to feel tired and overwhelmed. It does not mean I do not love my child it means I care deeply about them and do worry if I can do enough. If I can get all the right help for him and support to help make him a successful human of planet earth-and whatever that means for him.

When you deal with tantrums its like your emotions need to be put in a box in the back of your mind. Your social embarrassment, your anger at the choice they are making. It needs to be locked up so you can deal with it calmly.

And those feelings need to go somewhere and sometimes that is into a tissue in a dark bathroom with the door locked.


My son lives in a world where he is going to have to work extra hard to understand and cope with and my daughter has this amazing ability to verbalize all her emotions whatever that might be which I love and admire and really encourage.

So, tomorrow is a new day. I have my basic routines down with my son and being large (38 weeks along) and swollen (I call my foot a stump because its the same size as my leg currently) I have to be grateful for all that I have.

I can recognize the hardships, challenges, the long exhausting journey I feel like this past year as especially been for our family but the fact that I get to be a mom if frickin awesome.

And if one day I upgrade my worn rainbow flip flops for prada highheels and decided to take the time to get my nails done regularly on my hands then double hallelujah for me-I've probably made it.






Monday, January 19, 2015

One Wedding and a Funeral


                              Just one wedding this year for me. My sister's.
Being that she is older than me, a lawyer and has older kids, she probably has had some more relationship experiences than I have with men and I should not worry. And I don't worry in a real sense (I love this guy!)

 but I still feel the strong desire to whip out a good ol gruff Irish accent and threaten him good in true to a made up home country brogue "You treat her well or I'll have your arse". And I'll squint me eye at him whilst I take me pipe out of my mouth and blow it in little hammer shapes above him.

And-this coming- from a 5'4 160lb blonde female this will be very intimidating. With me suspenders pulled slightly away with my gloved thumbs and my Italian Grandma Body tapping deh boot of me moccasin on the bar's wood floor.


I still have a couple months to find a nice dress to fit this curvaceous mexican/american/scottish/hotchocolate sweating body. Oh but I'll do it.

This weekend has been pretty sucky-for me. And I am pretty sure my hot sexy nurse husband is pooped out as well. I was down and out with strep throat...and got the flu. Like the puke flu. When my body gets angry and sick it likes to let it out all the other end as well. Because basically, even after all the years of evolution in my gene pool my bowels are very weak willed (I would not have survived pioneering).

So tonight, Monday. After my oldest finished his Harry Potter reading. My youngest (yes there are two of em) was sound asleep. I did what any normal, hormonal, socially deprived, recovering sicky would do.

I decided to go on Zillow and look up my house in California. The one we are renting while we are moved to this new country of Utah. Then I go to Redfin and find what looks to be a google camera picture of the front.
Yes, the one bush my husband begged me not to take out-missing. (my intention was to take out all of them....there were three) . The end of the driveway light (that was runover by my husband...by "mistake" according to him. After I told him I was going to put a red and blue light in them and flash the light anytime a car was speeding by. Coincidence? I think not) still duck taped...thats right DUCK taped.

 But seeing our old home, in all its somewhat outdated awesomenes-I mostly noticed the  citrus trees and flowers out front,  and our cars parked out front in the photo. I see the sun shining, trimmed green lawn and lampost.
Well, it made me cry.

It first started as one silent tear falling. Then as my husband comes over (I am laying in our king bed cradling my little netbook) curiously asking what I am looking at-I show him the picture-and start to nearly weep.

"I miss our old house!"

Within a  few minutes l I am semi bawling (the kind that gets stuck in your nose because you are trying to hold it in (and at which point he has brough in reinforcements for me...and himself...chocolate)

"I miss my home Country!"
"I miss having friends come over to visit. I miss not having friends to go visit whenever I want. I miss not having my family nearby! I miss being able to take a walk in shorts and flip flops in January and be in the sunshine!"

As you can guess. Yes, I am a big baby. And Yes, after laying in bed for three days very sick with little protein and forced fluids, stuck inside away from real society....I was not my best self.

So I sit muddled over my hot chocolate (which is delicous) pj shirt and underwear on moaning about my sadness.

 I suggest that maybe I need to have a funeral for my home country of California.

"So you can let it go and move on?" he asks with optimism and brightness returning to his eyes.

"NO! The grieving process is a long one and I am still in angry/sad phase!"

I think this is the point in the story where he should have been allowed to take a courtesy bow and walk backwards awkwardly out of the room and throw chocolate at me (well I should say MORE chocolate he had already made me some hot chocolate which I was crying into...as I said at the beginning...old italian grandma body). But he stayed with me blinking occasionally.

After a few blubbery  breaths I suggested he do the Eulogy for the funeral. I could sit in the corner in a lovely black chanel tweed dress suit with veil over face and beautifully cry into my hermes hankerchief. Short legs crossed on top of the stool I am using (My feet  can't touch the ground unless I am wearing very high heels-which I blame on my mexican gene pool so the stool is necessary). He, handsome as always, carrying out a beautiful speech how "Despite the dang high reality prices, crazy income taxes and electricity rate...California was A M A Z I N G". And I would nod in approval as he sat respectfully next to me patting my knee gently.

Next, Andrea Bocceli would sing "Ave Maria" and come over afterwards, hold my face in his hands and tell me how young my skin feels. And I would say "its due to the Utah weather, I never see the sun and I am constantly applying special cream to my face to not let it crack from the dryness".

Yes, I think I'll have to do this funeral sometime soon.

I think its Ok to mourn the loss of a different life. Of friends. Of family. I don't believe you ever lose anything (besides your mind) or anybody forever. However,   sometimes  it feels we are forced to walk through a door without a turn back handle. Its been 6 months since we moved here and it has felt like when you fit into your skinny jeans again and you are feeling all good and then suddenly 4 days later they are 3 sizes too small. Like a little hope and dream was shattered-and you literally hear it being crushed.



I don't know if I will ever feel like I "fit in" or find "my zone" here if you will. Its just a different culture and-at no surprise to me-I am surviving the winter and don't really enjoy some of the culture changes I have found here
 I have lots of tools I use and coping strategies to deal with this  but it doesn't make it easier. It just makes it throb a  little less. I know it will work out. I need to give it at least 3 years. It seems it can take getting used to anything almost in 3 years. I also think after three years I will better understand if I can swallow more years here or if I need to find an alternative income to get back to my homeland.

And despite my low tolerance bowels-I have a strong heart and soul. And these short legs are going to work that linoleum dance floor at my sisters wedding-in whatever stretchy dress I mush this pregger body into.

Because of this awesome happy wedding-I will get a vacation sooner to California!